Chapel Haven – A Place to Call Home
This piece is the sixth in our series "Special Education Schools: Getting Past the Sticker Shock." This series, which will continue for the balance of the 2021-2022 year, is intended to highlight the differences between independent special education programs and give parents a sense of what makes each program unique, and what lies behind statistics like student-teacher ratio and "behind the sticker." The schools highlighted in this series represent a wide range of special education independent schools in Connecticut and New York; each school serves specific and particular profiles of learners and may not be appropriate for all students with special education needs.
The day my son was diagnosed with autism was the day all my parenting assumptions died. From that day forward, I never took any milestone for granted. One thing about being the parent of individual with particular needs is that you don’t – you can’t – take a lot for granted. You watch your friends’ children sit up, crawl, walk, and talk before yours. Later on, you watch other children do other things – meet other milestones – that are delayed for your child, and sometimes not attainable at all. Things like being able to get away for a weekend with your spouse are often not possible, or at the very least extremely difficult, if you have a child with autism, cerebral palsy, Down Syndrome, etc. And whatever milestones are achieved, they are often achieved with herculean effort on the part of the child and the parent. Whether it’s learning to read with dyslexia or learning to drive with autism, these accomplishments or milestones – so often taken for granted by the vast majority of parents of typical kids – are achieved through tremendous effort and determination by all parties involved.
Living independently is a milestone many parents of children with special needs can’t take for granted.
Living an independent life is one such milestone. Parents of typical children don’t spend too much time thinking about it – particularly when the child is in elementary school. However, most parents who fight for every milestone achieved start thinking about independent living when their child is still young – often when the acronym “ADL” (Activities of Daily Living) first appears in an evaluation, or on an IEP, or in a conversation with a professional. Chapel Haven’s community exists for families that may not know if ‘independent living’ is a milestone their adult child will achieve, particularly on their own.
Chapel Haven is uniquely designed to support adults with specific needs on the path to adulthood.
Chapel Haven Schleifer Center is located in New Haven, Connecticut and focuses principally on adults with developmental disorders during the pre-adult period from 18 years onward. Chapel Haven incorporates a variety of different programs all the way through full residential program; the ‘menu’ allows parents and families to customize the appropriate level of support necessary for their family member to succeed. This also allows families to dial up, or down, the level of support at any given time. The REACH and ASAT programs are housed in New Haven in a brand-new, state of the art, four story community designed to provide 24-7 care and oversight while offering students the opportunity to be full participants in a supportive community. Finally, SAIL, or Schleifer Adult Independent Living – opened in spring 2020 – and is the newest part of Chapel Haven’s campus expansion.
Chapel Haven’s REACH (Residential Education At Chapel Haven) is its core flagship educational program, designed for young adults with diagnoses including intellectual and developmental disabilities, autism, Down Syndrome, and cerebral palsy. In the REACH program, young adults live together in a two-year residential transition program designed to build foundations for independent living. In the ASAT (Asperger Syndrome Adult Transition) Program, young adults with Asperger Syndrome, mild autism, social communication disorders, nonverbal learning disorder, and other learning challenges learn skills necessary to live independent and productive lives. SAIL (Schleifer Adult Independent Living) is an intergenerational, tuition-based facility housing adults of all ages with varying levels of support to foster and grow independent living skills while creating a sense of community between residents. SAIL is comprised of 1-2 bedroom apartments located around communal living spaces and includes housing and staff assistance, transportation, case management, coordination of medical appointments, and more, with additional serves available on an add-on basis.
Chapel Haven is simultaneously self-contained and fully integrated into the surrounding community.
I recently had the opportunity to visit Chapel Haven and have a tour of the campus. What struck me first of all – although I have been to the campus several times – is that the Chapel Haven campus is on one hand a self-contained community and on another hand well integrated into the surrounding neighborhood. This is reflected in the trajectory of many of the CH students, who spend two or three years in the heart of the Chapel Haven community, learning valuable and necessary independent living skills, and then graduate to more independent living in the New Haven community. They are steps away from Chapel Haven and remain connected while maintaining independent residences, commuting daily to jobs, and keeping CH social connections alive both through the CH community and outside of it. Chapel Haven is currently in the midst of a capital campaign to provide a new senior living center and additional renovations to the campus as a whole; all of these changes will enhance the longevity potential for residents in the CH community.
Chapel Haven’s feeling of community is most evident in its community members.
The other thing that struck me on my most recent visit to Chapel Haven was the community members themselves. Warm and welcoming, everywhere I went I met a CH community member who was eager to show me around, give a tour of a classroom or even their own apartment, or just share their experience in general. I was treated to a lovely tour of a young woman’s apartment conducted by the resident herself; the apartment itself was large, well maintained, and well organized according to its residents’ specific needs. The apartment itself was spacious and clean and gave off freshman year dorm room vibes, but its size and cleanliness vastly exceeded most New York City apartments that I’ve been familiar with over the years.
In the words of a parent – Chapel Haven creates a “home away from home” for individuals with developmental disabilities
Recently I asked a friend of mine, Kris Burbank, for her thoughts on Chapel Haven, given her experience as a parent in the CHSC community. Here’s what she wrote:
CHSC has been such a gift to our 25-year-old son, Andrew. Despite his severe cerebral palsy, he always dreamed of living on his own (away from his parents, just like his siblings). He attended the REACH program at CH and moved into SAIL earlier this year. To say he is happy is an understatement. We are delighted with his experience, and so is he.
CH does an exceptional job of creating a “home away from home” for individuals with developmental disabilities. In REACH, Andrew was given opportunities to grow into adulthood, learning things we simply could not teach him at home. He developed a sense of independence, accomplishment and autonomy that still astounds us. And he continues to build skills, friendships and his ability to self-direct his life as part of the SAIL program…
Andrew once described CH as a launch pad to his rocket ship. I love this metaphor. He sees himself soaring in the community, building relationships and getting involved in things he’s passionate about. He sees CH as a safe and supportive “second family” that launches him in whatever direction he wants to go. He explores. He dreams. And we are thrilled!Kris Burbank, Chapel Haven parent
Kris was kind enough to connect me with her son, Andrew, so he could share his thoughts on his Chapel Haven experience. Here’s what he shared with me:
What I like most about CH is that I have my own apartment and can invite whoever I want over to visit. My apartment is really nice and I’ve decorated it all myself. I work at my desk a lot and also have decorated with things that matter to me. It’s nice to be able to decide these things and pick out what I like for my apartment.
I really like SAIL because I live with people of all ages. This is good because it feels more like family than a dorm. In REACH, it felt more like college. SAIL feels more like “normal life” with my second family.Andrew Burbank, Chapel Haven resident
While not appropriate for everyone, for many young adults with developmental disabilities Chapel Haven provides the structure, support, and resources to enable these young people to begin to live independent lives. This milestone, like so many others, cannot be taken for granted.